Vaya con Dios.
My Stories
Look at that. A full-grown woman pulling off pigtails. Her crazy is off the charts.
That sucks. The choices suck.
Its the only thing I can think of to say.
*sends many hugs along* 
The end of one story always marks the beginning of another...
Awww Charlie, this sucks. You are always in my prayers. Love & hugs
Damn, that is not a choice I'd want anyone close to me facing.
Whatever happens, we're here for you.
"Don't you know dead is spelled m-e-n-t-a-l in CoH? - SapphireShot
Wow, 6 of one, half a dozen of another of a crap sandwich.
Just remember we are all here for ya.
I am taking my sig to MWO and MWT. Let them wonder what it means.
What can I say, Charlie :-(
The choice you have needs extensive discussion and elaboration first, although they are both worth trashing.
I am around if you like to talk.
Leader of the Paragon Punishers SG and the Phantoms of War SG
Thanks everyone. Whatever happens, it will be for the best. I have to give them my decision tomorrow, and I've not really decided yet.
But I have some ideas in mind. I'll let you know how things turn out.
*hugs* Really what else can I say?
So. I made the decision after speaking with the doctors all together today.
They answered my questions, and after a LOT of discussion, we came to an agreement.
I'm NOT having the big surgery that would leave me with no touch sensation, blind, and deaf. Quality of life just isn't worth what I'd lose.
Instead, we're going to have a series of smaller surgeries, to cut away as much of the damaged areas as possible, without touching the sight or hearing nerves.
What does this mean?
Well, the damage is done. I'll still go deaf, and blind, eventually, but a lot slower than if they did the big surgery.
I'll still be permanently in the chair, and lose most touch sensation after this surgery, and it won't save my life, but I'll be mostly out of pain, and still be able to see and hear for now.
Doing it this way, I'll gain a few more months, maybe a year. But at least I'll still be able to see and hear. And the pain will be more bearable.
Thanks everyone, for keeping me in your thoughts, and all your kind words.
Above all, remember one thing: I love you all. And I intend to be around as long as I can!
Not the best of news. . .But better than the first two options.
Will continue to send positive thoughts and prayers your way.
*hugs lots* There is always another option. Your choice looks to be the best one out of a group of **** options.
...
...
... *hugs again*
The end of one story always marks the beginning of another...
I'm sorry.
This shouldn't happen to good people.
So. Just for the heck of it, I started blue-skying plans for a road trip today.
Depending on how I do after the first couple of surgeries, and getting the gas money, I started mapping out a road trip to visit as many DJs and friends as possible.
Keep in mind, this is all very blue-sky.
The map so far, is here: http://charlie.kjsr.net/thetrip/
If you want to be added, give me a city/state to add to the route!
Get the lemons: http://charlie.kjsr.net/index.php?p=...&c=1&tb=1&pb=1
...wow.
What you want doesn't matter?? I agree with your assessment.
That just pisses me off. >.<
The end of one story always marks the beginning of another...
Wow just really WOW. Talk about a God complex. Maybe that doctor needs to meet Mr. Fingermasher the sledgehammer. 
With your trip ya going to make a detour and see Cimmarron?
I am taking my sig to MWO and MWT. Let them wonder what it means.
my goodness!!
You better plan on stopping to visit with all us Wentworth's here in NorCal!!
Sultry Siren - The Cape Radio
Infinity - Sultry Siren, Mrs. Wentworth & more (5th Element, The Wentworth Country Club)Virtue - Lydia Chapman, Mrs. Wentworth, Anguisette., DJ Sultry Siren
Ok, long story short. Today was mapping out the damage, to see exactly how far they could cut without damaging my hearing/vision/etc.
Good news: They can do the surgery, and I'll never be in pain again. The surgery will increase my lifespan a "good amount."
Bad news: It's going to leave me deaf, permanently on the right side, and a good chance mostly deaf on the left. Partially blind (hopefully temporarily), without any touch sensation, and in the chair 100% of the time (no more using a cane/walker to get to the bathroom).
So, my choices are: have the surgery, and be stuck in the chair blind, deaf, and numb. Or, don't have the surgery, and die from the pain within the year.
F****** yay for choices!
The doctor pointed out something too.
25 years ago is when I had my knee replaced, and my lower leg has been numb ever since. If they had thought, they could have tested me then, and found the Marburg's, and started me on meds to treat it then.
5 years ago is when I damaged my hand. If they'd thought to check, they could have tested it, and started me on meds to treat it then, too.
Over the last 25 years I've complained about numbness any time I've gotten a decently sized injury. That's the big symptom of Marburg's Variant. Numbness caused by nerve damage.
The meds wouldn't have cured it, but they'd have stopped it from getting so bad. It'd mean a lifetime of taking medication daily, but it would have kept me from being as bad off as I am now.
Once it reaches the occipital nerve and settles in, no meds on earth can fix it.
So all this could have been avoided, if somebody had thought for a minute, sometime in the last 25 years.
I'm a bit bitter about that, to be honest.
Whatever choice I make, remember one thing, my friends. I love you all. Even Rasta.